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Organization for rare diseases India, USA (ORDIUSA)

Organization for rare diseases India, USA (ORDIUSA)

Owner: ORDIUSA Admin

Non-Profit members: 2

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Organization for Rare Diseases India in USA (www.ordiusa.org) is a 501(c)(3) non-profit public charity with the vision to foster collaborations between patient advocacy groups and researchers in USA, India, and other countries to help accelerate clinical research, trials and therapy access across borders. ORDIUSA aims to be a catalyst in making rare diseases as easily diagnosed and treated as common diseases like Diabetes, Hypertension, TB, and AIDS.

  1. Connecting patients living with rare diseases in India and USA with patient advocacy groups, with research or clinical trials and international Consortia such as IRDiRC, Globalgenes, and UDNI.
  2. Accelerating diagnosis and treatment options for patients with rare diseases through multinational public-private partnerships.
  3. Exchange and mutual co-operation for public health policy development/implementation Such as Rare Disease Policy and Orphan Drug Policy between USA, India and other countries.
  4. Organizing national and international conferences to bring all stakeholders of rare diseases together for debates and discussions.
  5. Facilitate cross-border research collaborations.

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Participating events

ORDI USA at Sevathon-2019

Fund raising for this cause is over

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